This blog is the story of Sophie and her impact on our family, friends, and my world. I may post periodically here when it pertains to Sophie. As I move forward in my life I decided that it would be good to start a new blog. If you wish to continue with me, please visit … Continue reading
Author Archives: jodykp
A Golden Memory
A Golden Memory December 28, 2021. This is the date of Sophie’s Golden Birthday. She would have been 28th on the 28th. While it hurts some, she’s now been gone from her earthly body for some 950 days. Two years, 7 months, and 5 days. (Don’t worry-I used a date calculator.) I’m ok. I will … Continue reading
Picking Up the Pieces
It’s been so long since I’ve written. It was just days before Sophie died that I wrote the last blog post. It was May 19, 2019. She passed away May 23, 2019, peacefully doing what she loves the most- watching YouTube videos in front of her beloved computer. She knew her plan, we did not. … Continue reading
Finding Grace While Holding Space
Sophie’s body is starting to fail her. Ok, maybe that isn’t the right thing to say. She’s had so many parts of her body “fail” and she just keeps on going. She’s been so happy these days. Are these our sunset days, our days to cherish when there aren’t any more to share? Table conversations … Continue reading
Turning 25
A quarter of a century. How did we get here, my sweet, complex child? So many memories of great times, good times, not so good times and horrific times swirl in my head. Living with and loving a medically complex child is a whirlwind of a life. On those quiet days that some would call … Continue reading
Looking Back, Moving Forward
After the divorce, I have found myself with time that I didn’t have before. Weekends free here and there to explore, relax, feed my soul. At the age I am, it is essential to me to connect with my past as I move into my new future. Friends who have been there through some of … Continue reading
As She Turns 60
Wow. How did I get here? My contemporaries are contemplating retirement or are there. Most have grandchildren. I grew up fairly affluent, but that is not where I am today. Today I am starting over. As I turn 60 glorious years, I am contemplating my impending divorce and re-inventing myself in my 6th decade. Not … Continue reading
In Gratitude
As I listen to my 24 year old medically fragile, special needs daughter giggling in the next room, then laughing outright as I change her, I give so much thanks to the world. There is so many people to be grateful for in this journey with Sophie. Not forgetting all the professionals, friends and family … Continue reading
Sophie Newsletter Nov 2005-May 2006- Adjusting, Broken legs, and ulcers
Sophie News (Sophie is 12 years old!) Nov. 2005-May 2006 First Things First!, THANK YOU! Thank you all for being so patient with us in getting out our letter and to say “thank you” from our hearts. It has been over a year since we have written- our last newsletter was in August of … Continue reading
Sophie Newsletter August 2004- New Beginnings
Sophie News August 2004 (Sophie is 10 years old Hi everyone! It’s been a busy 8 months or so since our last newsletter. The new house in Wheaton has been wonderful- to have a ranch home is such a welcome relief from all the lifting. Sophie (and Billy) love to get around to every corner … Continue reading
one in a million kid 