Jody Prunty is a special needs Mom who writes occasionally about her family and the challenges of raising a child with a rare disorder.
I hope you like what you read. Please let me know if you are inspired, touched, or just want to connect.
Sophie Prunty was born with a rare condition, Hereditary Sensory Autonomic Neuropathy Type 2, non-Charcot Marie Tooth, in 1993. She has faced many challenges in her life, some that were life-threatening. Her condition is not degenerative in nature, but many aspects of it can lead to a shortened life. Her family works tirelessly to give her a life that is full of fun while managing the day to day medical issues.
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