close up xmas 2010-Jody

Jody Prunty is a special needs Mom who writes occasionally about her family and the challenges of raising a child with a rare disorder.

I hope you like what you read.  Please let me know if you are inspired, touched, or just want to connect.

South Dakota 2011,pets, prag page 002 (2)

Sophie Prunty was born with a rare condition, Hereditary Sensory Autonomic Neuropathy Type 2, non-Charcot Marie Tooth, in 1993.  She has faced many challenges in her life, some that were life-threatening.  Her condition is not degenerative in nature, but many aspects of it can lead to a shortened life.  Her family works tirelessly to give her a life that is full of fun while managing the day to day medical issues.



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