Pausing to Breathe

I had the extraordinary opportunity to spend a long weekend at a Breathe the Change Retreat in upper Minnesota.  It was gifted to me by a good friend that knows my life doesn’t give me much opportunities to spend time on myself, to pause.  A last minute decision and a logistical nightmare, sometimes the world … Continue reading →

Sophie Nutrition Update November 2013

This just keeps getting better! To explain, I have to go back in time- way back!  Sophie has never tolerated food very well.  Even from birth we had issues.  Her rare disorder, HSAN type 2, shows up in the strangest places, though we have learned from sharing with other families in this rare disorder group, … Continue reading →

Life in the NOT so fast lane

A number of circumstances have kept me away from writing.  Such is the life of a family with a medically fragile teen.  While Sophie is doing great overall, there are always things that need to get done that a “regular” 19 year old would be able to take care of themselves.  Ok, maybe I’m delusional … Continue reading →